Details about this organization as well as an extensive fact sheet about the disease. Includes details about support groups, a mission statement and contact information. vcfsef.org
Overview of VCFS describing condition, causes and red flags. Provides contacts for more information and treatment. By the Center for the Diagnosis, Treatment and Study of Velo-Cardio-Facial Syndrome, SUNY Upstate Medical University (USA). www.upstate.edu