| 1. | The CaF Directory | | | A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.
www.cafamily.org.uk |
| 2. | Shwachman-Diamond Syndrome International | | | Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
www.shwachman-diamond.org |
| 3. | Shwachman-Diamond America | | | Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
shwachmandiamondamerica.org |
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