| 2. | Ashly's Skeletal Dysplasia | | | A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
www.angelfire.com |
| 6. | GotGod?com | | | A family and memorial website dedicated to their son, Nathan Philip Batman, who passed away as a result of Trisomy 13, or Patau's Syndrome.
gotgod.com |
| 7. | Robert Kenneth Picklesimer | | | Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
www.picklesimers.com |
| 8. | Joy's Page | | | Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
www.lebaronfamily.com |
| 9. | XXXXY Syndrome | | | Information on this rare chromosomal abnormality.
www.xxxxysyndrome.com |
| 10. | Story of Robert Purkis | | | A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
swpurkis.pwp.blueyonder.co.uk |
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