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    1.Lysosomal Diseases New Zealand
     Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
    www.ldnz.org.nz
    2.Genetic Interest Group
     Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
    www.gig.org.uk
    3.Hereditary Disease Foundation
     Information about this non profit organization, news, newsletters, recommended reading and contact details.
    www.hdfoundation.org
    4. Related Diseases Society
     Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
    www.mpssociety.org.au
    5.Hereditary Hemorrhagic Telangiectasia Foundation International, Inc.
     Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public.
    www.hht.org
    6.American Society of Genetic Disorders
     Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.
    www.ashg.org
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