| 1. | Lysosomal Diseases New Zealand | | | Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases. www.ldnz.org.nz |
| 2. | Genetic Interest Group | | | Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided. www.gig.org.uk |
| 3. | Hereditary Disease Foundation | | | Information about this non profit organization, news, newsletters, recommended reading and contact details. www.hdfoundation.org |
| 4. | Related Diseases Society | | | Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events. www.mpssociety.org.au |
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