| 1. | The CaF Directory | | | Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
www.cafamily.org.uk |
| 2. | The Andy Fund | | | Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
www.andy.org.mx |
| 3. | National Foundation for Ectodermal Dysplasia | | | ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
www.nfed.org |
| 5. | Ectodermal Dysplasia Society | | | Information about the organization as well as the ED condition. Includes links, news articles and contact details.
www.ectodermaldysplasia.org |
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