| 1. | Alliance of Genetic Support Groups | | | National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
www.geneticalliance.org |
| 3. | Chromosome 22 Central | | | Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.
www.nt.net |
| 4. | S.O.F.T. | | | A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
www.soft.org.uk |
| 6. | S.O.F.T. | | | Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
www.trisomy.org |
| 7. | Cornelia de Lange Syndrome (CdLS) Foundation Outreach | | | Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
www.cdlsusa.org |
| 8. | Friedreichs's Ataxia Network | | | Support group providing some answers and up to date information on local support and worldwide research being conducted. Based in Brisbane.
www.fan.asn.au |
| 9. | Ideas | | | A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
IDIC15.ORG |
| 10. | Chromosome Help-Station | | | Information on rare chromosomal disorders. Support and advice for families.
www.chromosomehelpstation.com |
| | |